Experience of primary care for people with HIV: A mixed-method analysis

Tanvi Rai*, Jane Bruton, Meaghan Kall, Richard Ma, Erica Pufall, Sophie Day, Valerie Delpech, Helen Ward

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)

Abstract

Background: Advances in treatment have transformed HIV into a long-term condition (LTC), presenting fresh challenges for health services, HIV specialists, and GPs. Aim: To explore the experience of people living with HIV (PLHIV) regarding consulting their GPs. Design & setting: A mixed-method analysis using data from two sources: a nationally-representative survey of PLHIV and a qualitative study with London-based PLHIV. Method: Univariate logistic regression was used for quantitative data and framework analysis for qualitative data. Results: The survey had 4422 participants; the qualitative study included 52 participants. In both studies, registration with a GP and HIV status disclosure were high. Similar to general population trends, recent GP use was associated with poor self-rated health status, comorbidities, older age, and lower socioeconomic status. Two-thirds reported a good experience with GPs; a lower proportion felt comfortable asking HIV-related questions. Actual or perceived HIV stigma were consistently associated with poor satisfaction. In the interviews, participants with additional LTCs valued sensitive and consistent support from GPs. Some anticipated, and sometimes experienced, problems relating to HIV status, as well as GPs' limited experience and time to manage their complex needs. Sometimes they took their own initiative to facilitate coordination and communication. For PLHIV, a 'good' GP offered continuity and took time to know and accept them without judgment. Conclusion: The authors suggest clarification of roles and provision of relevant support to build the confidence of PLHIV in GPs and primary care staff to care for them. As the PLHIV population ages, there is a strong need to develop trusting patient-GP relationships and HIV-friendly GP practices.

Original languageEnglish
Article number1665
Pages (from-to)1-14
Number of pages14
JournalBJGP Open
Volume3
Issue number4
DOIs
Publication statusPublished - 1 Dec 2019

Bibliographical note

Funding Information:
The Positive Voices survey was funded by Public Health England and supported by a research grant from Gilead Sciences (contract number: 001/UK/16-11/NM/1021). The qualitative study was funded by grants from Imperial NIHR Biomedical Research Centre (reference number: P35771), the Imperial College Healthcare Charity (reference number: P44223), and supported by the St Stephens AIDS Trust. No pharmaceutical grants were received in the development of this study.

Publisher Copyright:
© 2019 The Authors.

Keywords

  • Chronic disease
  • Empathy
  • General practice
  • HIV
  • HIV infections
  • Patient satisfaction
  • Qualitative research
  • Social stigma
  • Surveys and questionnaires

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